June 22, 2010

Update after Daron's Appointment

Well I found out that the doctor is going to put Daron on 2 new meds. One med is supposed to help him with his walking - it causes the nerve fibers to fire quicker so that his legs will move faster & better. The other med is a nasal spray that will help with his bladder issues. We will hopefully have both of these meds by the end of summer. Next month we have a very busy appointment. He has to have an MRI, then see the doctor, then have his infusion all in one day. But with having the MRI the doctor will be able to see how things are going in his brain - if he's gotten better or a little worse. So please keep praying about that.

Have a great day!!

June 20, 2010

Wonderful Father's Day

Well I got the surprise of a lifetime!! My Dad showed up at my church today between church & the ABF hour. He has been in Afghanistan since March & was sent home for some R & R for two weeks. He just got in yesterday (June 19). I was so schocked when he showed up & was proud to be able to show him off to my Good News family & Friends. He is here until July 5 & then will have to go back to Afghanistan until January 2011. Wow, I thought that the kids are supposed to do something surprising for the Dad's not the other way around. But the look on Taylor's face was priceless. His jaw hit the floor & he almost couldn't move for a minute. He later told me that seeing his Grandpa took his breath away. I can't wait to see what his reaction is going to be in January when I bring my Dad into his 1st grade class.

June 16, 2010

BUSY day today

Well, today is going to be super busy. I am babysitting today, Daron has PT, I have a piano lesson, all 3 of us have to drive to Utica to drop Taylor off with my in-laws, Daron & I have to then drive to Ann Arbor.......like I said, busy day. So let me break it down a little bit.

I'm babysitting until 3:30pm
Daron has PT at 10:30am
I have a piano lesson at 4:30pm
After my lesson all 4 of us have to drive 2.5 hours to Utica to drop Taylor off at my in-laws for the night
Then Daron & I will drive another 1 - 1.5 hour to Ann Arbor to the hotel since Daron has his monthly appointment tomorrow

Can't believe how busy everything is today. Oh well, we all got to relax this weekend with Tara's family at the cottage. At least Taylor is done with school for the summer & will get to hang out with his cousin Chase who he rarely see's. So he is looking forward to it & I am looking forward to being able to talk to Daron's doctor again about the changes to Daron's meds.

Well, time to get off the computer so that I can get a shower & stack packing 2 seperate bags for tonight. Have a great day!!
Here's a fun pic of Taylor that was taken at our last ABF class party.

June 11, 2010

Daron

Well we are once again facing a new medication for Daron's MS. I am not sure which med they are going to put him on yet, but I will find out next week when we head to Ann Arbor for yet another infusion. I am hoping that this is the last or almost last infusion & that the new med will be easier. There are a few new meds on the market that can be taken by mouth or injection, so I am not really sure what type they are going to put him on.

Daron is having a few issues with strength in his legs, so he is having some issues walking or even standing up. Mentally he has problems with remembering things, especially really simple things that he has done for years. Emotionally he has gotten some issues under control with the help of counseling & medication. I am thankful that I have my husband with me every day & am praying for a long time with him. I will continue to keep you updated as I get information.

Oh, in case you are wondering, the color of my blog is to remind you that MS is everywhere. Orange is the awareness color for MS (plus, orange & black are Daron's high school colors).

Struggles

I have been struggling to.... ....get out of bed in the morning. ....be a good mom. ....take care of my house. ....take care of myself. ...