April 24, 2012

More Changes

A week ago I had to take Taylor to see a child psychologist. I took him there in order to get another opinion on what is going on with him. I also took him there to see if there is something more going on with him mentally. After talking with the doctor for almost an hour, we left with a diagnosis of Anxiety caused by his environment. I wasn't surprised by the diagnosis considering what has been going on the last few years. Even though he's only 8 years old, he has been put through the ringer mentally & emotionally. I am just glad that he wasn't diagnosed with depression or bipolar.

We also left with a prescription for an anti-anxiety/anti-depressant for him. He just took his first dose tonight. Now I am praying that they will help him sleep easier, help mellow him out a little bit, help him remain calmer while at school & over all help with this mental well-being. He is such a smart child with a bright future ahead of him. I don't want something like this to get in the way of him reaching his full potential. Thankfully his anxiety is not debilitating or anything like that. He is a very out-going young man & I am thankful for that.

Please join me in praying for my son as he adjusts to the new medication. Please pray that he will be able to handle all of the changes that will occur within him during this time. Please pray that I will be able to make this transition time easy & low stress for him. I know that I have to remain his mom & be in charge. But I also don't want to cause anymore anxiety for him while he adjusts.

April 13, 2012

A Not-So-Good Doctor's Appointment With A Pretty Good Ending --- I Think

I took Daron to see his neurologist on April 12th in Ann Arbor. The appointment was to discuss the possibility of Daron ending his Tysabri infusions. Daron has had to go to the Ann Arbor VA once every 4 weeks to have the IV infusion of this medication. It has helped keep the flares at bay & it apparently healed the newest lesions (that just means that it repaired the lesions on the nerves in his brain that had not had a chance of destroying the entire nerve).

Anyway, here is the conclusion of the appointment: The doctor strongly advised us that Daron has to stay on the Tysabri or he will have a massive flare that could possibly leave him permanently bed bound & take away the last bit of ability he has in his arms & legs. It could possibly even shorten his life.

Not something you want to hear. Personally, I was hoping that Daron would be able to come off the Tysabri & start a new drug. But, I don't want to do anything that will risk his health & well-being either. The doctor did make sure to really point out to Daron that this drug is Not a cure & it will Not reverse the damage that was done from his flare in January 2009. With that said, the only thing it will continue to do is keep new flares from happening. In the meantime, the damage done by his flare in January 2009 will continue to take it's toll on Daron's body. That flare damaged many nerves in his brain & therefore took away his ability to walk with stability. He has muscular strength, but his legs are not going to be able to stabilize him & allow him to walk.

After talking with the doctor, I realized that the January 2009 flare did a lot more damage then I had first thought. I mean, I have been blaming the Tysabri for making Daron's health go downhill. That wasn't the case at all. It was the flare that started the snowball effect & now there is no reversing it. I hate trying to look back & say "what if I had just forced Daron into seeing the neurologist when he had that flare? Would he still have gotten to this point? or would he be better & at home?" I can't look back though. Everything that happened back in 2009 happened for a reason. I know that because I know that my God won't lead my family through something that we cannot handle. I trust that everything that has happened in my family's life has been for a greater good. I also know that I will never understand what the greater good is this side of heaven - & when I get to heaven it won't matter enough to ask about it.

So, while I am not thrilled with the outcome of the appointment or the things that I had to hear; I am glad that I will get to have my husband around for a while longer. Now I just have to continue praying that God will open Daron's eyes & allow him to see the good around him. He is so focused on the negative side of being in a nursing facility - out of the home, away from family, miserable, etc - that he is missing out on the wonderful opportunity that he has to be a light in Laurels of Kent. I just continue to pray everyday that God's will be done in my husband's life. I continue to hand my husband back to the Lord & trust Him to do what is best in Daron's life.

Will you pray with me that all of this will work out within God's perfect will?

April 3, 2012

Day Trip

On April 2nd, Taylor & I took a Day Trip to the Creation Museum in Petersburg, KY. We had an amazing time & we learned a lot of new things. We also got to bond as mother & son a lot while in the car. If you have never heard of the Creation Museum, you can check out their website here. They are completely based on the Creation account & teach you about the 7 C's of History - Creation, Corruption, Catastrophe, Confusion, Christ, Cross & Consummation.

Here are a few pictures from our trip.....











There are a lot more to see. If you would like to view them, visit my Flickr site here.

Struggles

I have been struggling to.... ....get out of bed in the morning. ....be a good mom. ....take care of my house. ....take care of myself. ...